My son cannot communicate with me. However, every now and then, he can manage to get out a few utterances. If he is extremely excited, or motivated by discomfort, I think he can get a few random words out.
My son cries a lot. Maybe it's frustration, and lately I think it could possibly be pain. I was holding him in a standing position the other night and asked him to take a step. He looked me in the eyes and said "It Hur", and I cried out "oh it hurts! Oh no, sit down then! It hurts?" I am searching out a new physical Medicine and Rehab doctor. The University of Michigan isn't too far from us now, so I am going to try there. I found a doctor that specializes in neck and back pain, so we'll give him a call.
Andy often responds well to Tylenol, which makes me feel he is experiencing some alleviation from pain. I will also give Motrin if he has a full belly. When I've tried other ways of soothing first, I will sometimes move to these medications, and they do seem to help.
I just became a registered nurse, and my ten-year-old son is infant-like, has frequent meltdowns, and cannot stand without support. He is missing a piece of DNA (chromosome 9q22.2) but we are unsure if it made him disabled. He has a diagnosis of severely multiply impaired, paucity of white brain matter, partial agenesis of the corpus callosum, microcephaly, deformities of the ankle and foot, and Autism.
My son seemed to have some severe pain that would have him crying for 1+ hours about every 3 days. Some days the pain was so severe it appeared to cause him to have what looked like involuntary muscle movements that we thought may have been seizures. He hasn't had one of these crying fits in a while now. The only thing that I can think of that may have helped was a GI doctor switching him from Zantac to Prevacid. He takes 7.5 mg twice daily. Not sure if Andy has reflux, but it may be worth a shot.
ReplyDeleteWe are now trying Zantac/ranitidine 2.5ml twice a day. It might be helping. He can't communicate to us the discomfort he has, just his crying and flailing.
DeleteAw, it's so sad to see your little kiddo in pain and feel helpless to stop. Hope the neck doctor helps!
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