I just became a registered nurse, and my ten-year-old son is infant-like, has frequent meltdowns, and cannot stand without support. He is missing a piece of DNA (chromosome 9q22.2) but we are unsure if it made him disabled. He has a diagnosis of severely multiply impaired, paucity of white brain matter, partial agenesis of the corpus callosum, microcephaly, deformities of the ankle and foot, and Autism.
Therapy time
Andy gets physical therapy, speech therapy and occupational therapy a few times a month at school. I am currently trying to get him into ABA therapy, which hasn't started yet. Andy only stands with assistance for a short while every day with his ankle foot orthotics on. He is mostly playing on the floor or sitting at the table for snacks and meals.
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