Sunday, January 8, 2017

We had the baby

I went into triage five days before the c section was scheduled due to some left side pain I was feeling all night long. The pain was right along my previous c section scar, and made me worry that it was thinning out or tearing. The doctors decided to perform that c section that day, which was my third, with the most rocky recovery yet. We were discharged from the hospital late in the evening on Christmas Eve, so we were able to be with Andy and our oldest daughter for Christmas morning.

Andy doesn't like the baby, because she makes unpredictable noises. I've been keeping her upstairs mostly, while Andy is downstairs with my husband. I wasn't able to get upstairs though for about 4 days after we came home. My incisions had to heal up a bit before I could attempt to climb the stairs. Every time I needed to get up and down from the bed or chair, toilet, etc. my husband had to kind of bear hug me and help me to stand. Even now, two weeks later, doing the stairs makes my surgery site hurt and I have to walk around really slowly. I am very lucky that Kevin has had these last two weeks off of work, and my mother-in-law and mother have been able to help us when we need things, or have to get the baby to her appointments. I still haven't attempted driving yet, because I feel I still need to heal up. My recovery has been really slow this time.

Fortunately, our baby has been really good. She only cries when she needs a new diaper, or is hungry. She's been pretty great, so we've been lucky there. My older daughter really loves her as well, and it's been a nice bonding experience for all of us.

We got Andy some wireless bluetooth headphones with noise cancellation that we hook up to an old iPhone. He has a playlist of pop music on it that helps him calm down when he gets mad. If the baby starts to cry or grunt, or gets vocal, we put the headphones on Andy, and it stops the meltdown from happening. But lately, we've just been keeping them on different floors and that's been much easier for everyone.

Friday, November 25, 2016

Preparation for Thanksgiving break and the new baby

I am 35 weeks pregnant now, and I have slowed way down. Being pregnant at almost 40 has been very different than pregnant at 30. My blood pressure has been running very low, which requires me consuming at least 150 ounces of water a day, so that I don't feel light headed. I also take extra Iron due to anemia, which has it's own issues. I haven't been lifting Andy for a couple of months. I feel like it is too much of a strain to lift him now as he is almost 50 pounds.

Every day I try not to overdo it, but I always feel the need to clean and organize things, while the kids are at school. I get worn out fast and easily in this pregnancy. Knowing that Andy would be off of school for the next 5 days due to Thanksgiving break, I started to panic and wanted to get everything vacuumed before he came home from school. Andy hates hearing the vacuum cleaner, and if he hears it he is set off into a one hour meltdown of crying.

The same thing goes for using a blender or mixer. Andy gets set off by these noises. So, I quickly made three different kinds of cookie dough for the holiday with my mixer before he came home from school. All while being sick with a sinus infection. I just keep chugging along and trying to make sure I am getting all the rest I need for the baby.

Andy having time off from school is very tough, because he gets bored easily, and will start crying and become inconsolable. We always dread the summer vacations and the two week breaks. They are really hard for our family. On a better note, things have been going well with my daughter. She is so excited about our new daughter on the way. She has bonded with me again, and tells me that the baby will help bring us girls together. We can all bond and be close is what she feels. I really hope things go well, and I'm not torn from her like I was with Andy being so overwhelming.

We know that our lives are going to be completely rocked by this new baby, but I feel like my head is in a good place. I've done all kinds of prep for the arrival and I've tried to get myself psyched up for the challenges ahead with the baby coming into the home. The baby is due right at Christmas time, so I am trying to get all my shopping wrapped up right now, while I'm still mobile.

Monday, November 7, 2016

Rough patches from constipation and boredom

Lately when Andy is at home, he has a rough time on most days at least once a day. If he becomes bored or is uncomfortable due to constipation, he has meltdowns. We try our best to soothe him with music, television, and cuddling with him. We sometimes try a change of scenery and go for a ride in the car.

I am now eight months pregnant. I've been trying to avoid lifting Andy, and have my husband do it. It is difficult to lift him now that he is 48 pounds and I am quite big. I am worried about when I will be able to lift him again after the c-section surgery. I will probably be afraid to try to pick him up for quite a while, because I have been out of practice with it for a couple months.

Bringing a new baby into the house will be quite challenging. I hope we can survive it, and the baby doesn't have any issues of her own. Seven more weeks to go!

Friday, October 7, 2016

Rough transitions after school

The first three weeks of school consisted of Andy getting used to long days again. He loves school, but he was very tired when he got home, and would get to bed early. The next two weeks after, he would cry as soon as we got home from school, and would be hard to console. I tried to do everything, including giving him Tylenol, in case of a headache, toothache, leg pain, etc. He just seemed to be in a funk as soon as I started to walk him into the house for about the first two weeks of school starting. Andy seems to be better adjusted now.

Wednesday, September 7, 2016

Andy got pneumonia from aspirating food/ choking on food (aspiration pneumonia)

Andy has had food go down the wrong way (lightly choked on food) a few times in the last couple months. I hadn't thought much about it. Sometimes, Andy aspirates food/ inhales it into his lungs accidentally, because he's overly excited while eating. 

A few weeks ago, Andy was appearing a bit more tired than usual, and was being cozy. It wasn't like him to take naps any more, he never wants to slow down. However, he took a couple for two days in a row. I took a few pictures, because I wanted to show my husband how worn out Andy was. When he started showing a slight fever, I was worried he was coming down with something. He had not had a cold or flu or anything in over a year and no one was sick that we knew of.

The next morning, Andy awoke with a fever of 104 degrees and was very irritable. It was a Saturday, and we went straight up to urgent care. I suspected an ear infection. The nurse practitioner said his ears, nose and throat were clear. She told me she'd like to take a chest x-ray. I was shocked. 

She said, "Sometimes when I see a kid come in with an unexplained fever, and nothing else is wrong, they end up having pneumonia". I contemplated having the x-ray, and was against any unnecessary radiation. I asked what would happen if I didn't get the x-ray. She said if it was pneumonia, the fever would stay high and he would start looking worse. I could come back in 24 hours and observe the fever if I was unsure, but antibiotics couldn't be given unless pneumonia was confirmed. I decided to go ahead with the x-ray right then. 

I'm glad we did, because he had pneumonia in his lower right lung. They ordered ten days of antibiotics. He continued to have a slight fever the entire course. At his follow up visit, they told me to bring him back in if his fever went above 100.3. They felt he appeared happy and wasn't tired and worn out anymore. They didn't repeat the x-ray, because they felt it unnecessary as he was "clearly on the mend". The doctor told me there was an "infiltrate" on the x-ray, and that it was most likely aspiration pneumonia. 

I recalled other parents of children unable to swallow food saying that their kids would get pneumonia whenever they tried to work on swallowing with their therapist. Some of them felt it wasn't worth it to keep re-visiting trying to eat food orally, when the repercussion would be pneumonia. A lot of the kids had to go through bad hospitalizations because of it as well. Luckily, Andy did not have to be hospitalized, and is doing great!

Tuesday, August 30, 2016

Waiting for school to start

We are waiting patiently for school to start. Andy has been home for July and August. He gets bored so easily and melts down. Now that I am almost 6 months pregnant, I am too tired to put Andy in the car and drive around for an hour. When we took him out yesterday for 30 minutes, it didn't really work that well. He just needs the structure of being back in school, which he loves. 

Saturday, August 27, 2016

Time to stock up on Huggies!

Now that I am pregnant again, I have been searching around for diaper deals. There is a coupon site that has been pretty good, Krazy coupon lady , and they also have a phone app. I am also looking around at all the diaper options, and I recall really liking the newborn Huggies, because they have the notch cutout for the umbilical cord. So, once I find the deals, I will be stocking up on lots of huggies !

I've decided that this time I will make things easy on myself, and have the diapers delivered right to my door. No more lugging around heavy diaper boxes with baby in tow. seems to be a pretty good option for diaper delivery. They offer free shipping over $49, which I will easily spend on monthly diaper needs. I also like their site, because they offer other products that I will need soon after the baby arrives, such as pantyliners, maxi pads, and breast-feeding supplies. I don't want to waste a bunch of time driving around trying to get these things, when they can be delivered right to my home.

I've also been looking around at mom forums for their opinions on diapers and deals, such as You can get some great honest opinions there on all things baby, and being a parent.   I also enjoy What To for pregnancy issues and concerns.  I feel that this time around as a new mom, I have lots of great new resources to work smarter instead of harder, and have more time to enjoy parenting.

Wednesday, August 17, 2016

Taking Andy to a party

We brought Andy's trusty headphones and iPod to my brother's house for a first birthday party. Andy needed to wear his headphones the whole time to keep from crying. We also sat him in a room with a few other people in it. The small kids mostly stayed in a different room at the back of the house. We fed him right there on the couch with his headphones on, and didn't try moving him to a table. The party had about 30 people, which can be chaotic for Andy, but the headphones help us to stick around.

Sunday, August 14, 2016

We are having another baby!

There are all kinds of emotions and thoughts we have about adding a new member to our family. We've been hesitant to have more children for years, due to our son being severely disabled. I found myself always feeling sad about having to suppress our wishes to have more kids out of fear of the unknown. The question of having more kids or not has been answered for us, and we are now expecting this Christmas. 

Friday, August 12, 2016

How I survive in public with my Autistic child

It's hard bringing Andy into stores because of his meltdowns, but I do it anyway. A way to make things better is to have Andy wear his iPod nano and noise-canceling headphones. Andy has a playlist with pop songs on it from artists like Black-eyed Peas, Kesha, Katy Perry, Justin Timberlake, Meghan Trainor, Lady Gaga and Jason DeRulo. 

I took Andy to Ikea just a few days ago, we went for breakfast and to pick up a few things. Andy really enjoys riding around in the car, so he really enjoyed that part. I pushed his wheelchair into the store with no problem and we rode the elevator. I got our breakfast and put it the trays on the cart and dragged it behind us as we made our way to the table. Andy was good until he heard a woman sneezing behind us several times. Then the whining starts and his lip is sticking out. "Okay Andy, lets put on your headphones". I start playing his music, and he's fine during the next half hour of shopping. 

Next, I had to stop by my brother's house and they have a one and two year old. Andy had to keep his headphones on the whole time, because any peep he hears from the kids makes him cry. He stayed busy with a bead toy while we were there. 

The next day, I took him to an outlet mall for back-to-school shopping. The headphones were a lifesaver again. I charge them at night or in my car on the way there to make sure they'll last for several hours. Andy started whining in the first store we went into until I put his headphones on. 

We are going to the one year old's family birthday party this weekend, and I will definitely be bringing the headphones and nano! They were also very helpful at a camping weekend we just took.