Friday, September 14, 2012

Stories needed from special needs parents and siblings

Lisa Davis has asked me to share the following post with those of you who are caring for people with "invisible disabilities".  Her email is located below for those wanting to share stories with her:

My name is Lisa Davis and I am currently teaming up with writer and neuroscientist Tricia Bliven Chasinoff to publish a book in the series called Easy to Love But... The first of the series, Easy to Love But Hard to Raise, is already published and out in bookstores and available on-line.

Easy to Love but Hard to Raise is an anthology of personal essays written by parents of children with ADD, ADHD, OCD, PDD, ASDs, SPD, PBD and/or other alphabet soup diagnoses that takes the already difficult job of parenting and adds to the challenge.

Ours is second in the series, and will expand the focus beyond raising children with disabilities.  The current book will address the experiences of children, siblings, spouses, and others who have close relationships with people who have been diagnosed with one of these "invisible disabilities".  We are also interested in hearing first-hand accounts of people who have been living with these disabilities.  While this book will not address parenting, per se, we will be including some stories from parents, specifically parents of adult children with disabilities or parents who have been affected by multiple generations of disabilities (i.e., when both parent AND child are affected). 

We need more stories and we'd love to hear yours!  You can e-mail for more information.  

Wednesday, September 12, 2012

Can't find the right school

I just can't leave Andy at school. He is so helpless, and defenseless. He gets upset so easily. All the other kids can step on him, and rip toys out of his hands. He can't do anything about it. I just want to cry all the time. Right now, I am trying to just take him in for services, and stay a little extra for some class interaction with the other students. However, school just doesn't feel right for him. In fact, it feels all wrong.

I feel that I need to gear up, and find better ways to be his teacher at home. It is just hard to find the energy and motivation. I feel exhausted all the time lately. I've visited several programs, and none seem to be the right fit for him. There's no way I'll leave him anywhere. He's like a 6 month old baby, and he's in a room of three-year olds. I'm crying again.