I just became a registered nurse, and my ten-year-old son is infant-like, has frequent meltdowns, and cannot stand without support. He is missing a piece of DNA (chromosome 9q22.2) but we are unsure if it made him disabled. He has a diagnosis of severely multiply impaired, paucity of white brain matter, partial agenesis of the corpus callosum, microcephaly, deformities of the ankle and foot, and Autism.
Sunday, April 15, 2012
Andy's getting more active
Very exciting today, I heard Andy say "la, la, la" for the first time. He also reached out and pulled himself into sitting. I kept lying him back on my bed and offering him my hand, and he'd take it and pull himself into sitting. Then when I put him in his crib he kept pivoting in circles over and over again. We are probably going to get him a twin size bed from Ikea, and we'll have to modify it. We just haven't made it a priority yet. He got his fish oils today and I just feel I have so much faith in him right now. I really feel like he is going to emerge right before my eyes over the next year. I was really disappointed when he turned two and nothing really happened for him. But maybe turning three will hold great things. I'm getting excited now!
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