I just became a registered nurse, and my ten-year-old son is infant-like, has frequent meltdowns, and cannot stand without support. He is missing a piece of DNA (chromosome 9q22.2) but we are unsure if it made him disabled. He has a diagnosis of severely multiply impaired, paucity of white brain matter, partial agenesis of the corpus callosum, microcephaly, deformities of the ankle and foot, and Autism.
Thursday, November 1, 2012
The Good, The Bad and The Ugly
I've been seeing way too much of the ugly lately from Andy, and my daughter! Oh, I am trying so hard to stay sane! My son cried for an hour at school today, then cried all the way home for 40 minutes. It is so mind numbing. I can't even focus on anything else. I'm just trying to keep my sanity here. I kept thinking, "now I understand that song 'I wanna be sedated'". I'd love to be sedated for a few days, just put me out of my misery, my God, I'm hanging on by a string. I couldn't do anything, after putting my son down for his nap, but sit on the couch and fall asleep. Despite all the laundry and cleaning that needs to get done. I need a break, Lord help me! Just WAY too much ugly lately. Enough already, I've had my fair share. Now I can go to bed.
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