Monday, June 18, 2012

Risperdal update

The Risperdal (Risperdone) seems to be working pretty well for Andy now. He seems to need to stay around .25ml in the morning to not be too drowsy during the day. If I give it to him at night, he seems to have difficulty sleeping through the night. I tried weaning him down to half his usual dose, down to .125ml, but after a week of this the crankiness and inconsolable crying was back in full swing. He would get worse and worse each day that I continued the .125ml, so I went right back up to .25ml. His nurse said I could try giving him .125ml in the morning and .125ml before bed, but I am worried the bedtime dose will affect his sleep. So, I'm sticking with just the morning dose for now.

Now, I am confident that he won't be crying all day at school, and inconsolable to the staff. I still need to purchase him a soft helmet though. I am worried that if he gets mad if he's on the floor at school, that he will bang his head backwards onto the floor. I place pillows behind him at home, but can't expect that there. They should have him in a chair, but if he starts being able to do other things on his own, I'm not so sure.

3 comments:

  1. Hi, Amy. My name is Andrea. I'm interested in talking with you and was wondering if we could e-mail. I hope I don't sound like a creeper (lol), but I've read your blog, and I can totally relate, and you're the first person I've found who also has a child with global dev. delays. I have a soon-to-be 2 year-old with GDD.

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  2. I meant to leave my e-mail address, whoops. ;-)
    drewalter(at)gmail(dot)com

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  3. Hi Amy,

    My name is Nickie. I have a 22 month old son with hypoplasia of the corpus collosum and global dev delays. Reading your blog your son sounds very similar to mine. I would love to talk. My email is nickie_200@hotmail.com
    Nickie

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