Sunday, June 17, 2012

Need to get VEP done ASAP

My head is spinning, there is so much to do all of a sudden. Andrew has had exoptropia in both eyes since 9 months old or so. This means his eyes drift to the outside (lazy eye). It is a type of strabismus. When the eyes drift inwards, towards the nose, it is called esotropia. Exotropia, is when the eye drifts outwardly, away from his nose. Andy's right eye mainly, drifts way out, but he can pull it back in when I ask for his attention.

In a nutshell, an optometrist told us that our son is very near being legally blind. However, three different opthalmologists have told us our son can see pretty well. He doesn't require near or far correction, but the astygmatism in each eye is probably keeping him from seeing clearly. He believes his vision might have him seeing just out of focus. The latest opinion doctor also suggested that children with neurological abnormalities often have trouble focusing. A pair of glasses has been suggested to see if Andy will "appreciate" the better vision, but I don't need to fight him on wearing the glasses. Okay...

So, then I took Andy to see a second opinion Physical Medicine and Rehabilitation doctor (PMR). He was great. He is also a top vision person, and says that vision, neurology and physical medicine all overlap. He asks me, "Can he see? Do we know if he can see?" I tell him about all the eye doctors and the varying opinions. He tells me to end this once and for all and get a visual evoke potential (VEP) done on Andy right away. I agree. I tell him, "no one has ever said this to me, ever".  I am so happy I went through with an umpteenth opinion.

Now I'm scared of what a VEP can find, one of the majors being cancer that causes a lazy eye. But I am ready to get this scheduled right away, and fear of the unknown won't stop me. The PMR also suggested going ahead and getting the custom made shoes for his afos, and also getting new spinal and hip xrays. I agree with everything.

It is nice to finally be talking to a doctor that seems to be on the same page as me. He is also very available for me to reach him. I am very thankful his school PT told me about him, and that I decided to listen.

Stay strong-

 Amy

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