We are on yet another school break today, so it's been a long weekend for Andy without school. He made it through lunch time today, and then started melting down. He seems bored, but was also not happy with the baby crying.
I don't have school today either. That's my getaway from all this. My husband is trying to work from home, and ignore all the screaming and crying from the house. Believe me, I want to cry too. The thing is, Andy needs to get out of the house. We don't need someone to come over and be with him, he needs to be taken out and entertained. I can't do that right now with the baby. He loves going swimming, which is really hard, as he's 50 pounds and unhelpful in moving around. My oldest daughter doesn't want to be seen with him either.
We took Andy to an arcade birthday party, and my oldest couldn't stand it, anytime we brought him near her. Get away mom, okay, go somewhere else now. Andy couldn't stay in the karaoke room we were in, because it was too loud for him. He had his music on his headphones, but he was still getting set off here and there.
My husband mostly walked him around the arcade and mall, while I played with the baby and fed her. Then we fed Andy and the baby an early dinner, and he was happy for a bit. He loved the one hour car ride there and back, the baby not so much.
Although the Christmas break was hell with getting sick for almost all of it, I did get to take my oldest daughter to a movie. My husband also took her to two movies during the break. We went to see Jumanji, and it was such a good movie. I laughed so hard a few times, I really enjoyed myself. It was a great night out for us.
I just became a registered nurse, and my ten-year-old son is infant-like, has frequent meltdowns, and cannot stand without support. He is missing a piece of DNA (chromosome 9q22.2) but we are unsure if it made him disabled. He has a diagnosis of severely multiply impaired, paucity of white brain matter, partial agenesis of the corpus callosum, microcephaly, deformities of the ankle and foot, and Autism.
Monday, January 15, 2018
Tuesday, January 2, 2018
Andy had a hard time at Christmas, he cried a lot once our house filled with people, and he did the same on the baby's birthday a few days earlier. He was happy to watch tv in his room though, and play with his toys. We have a video monitor that we use to keep an eye on him. He doesn't get into anything, he just plays with his toys and doesn't try to go anywhere. He will only really army crawl a foot or so. It gets hard when he has meltdowns, and his behavior gets out of control. I went into his room and laid with him a few times to get him to calm down.
The holidays always bring illness, so unfortunately, Andy ended up with strep throat from one of our visitors. None of us has it. Luckily, I had a sore throat as well, so when Andy started getting really upset and not eating, my throat pain lead me to check his throat with a light and a tongue depressor. It looked a little red to me, so I called his doctor on a Saturday morning. They were in and we got an appointment. He had a positive rapid strep test, but his pediatrician wouldn't check me. So, I had to drag Andy to urgent care with me, where I was told I did not have strep.
The baby has been self-feeding for months, so I'm trying to get Andy to do the same. He will put toys and cloths in his mouth with no problem, but will not put food in there. I think he feels its our job. I know he sometimes doesn't have the coordination to pick up and drop in, but its been a long time of us feeding him every meal. So, we will continue to work on feeding finger foods and snacks.
Subscribe to:
Posts (Atom)