I just became a registered nurse, and my ten-year-old son is infant-like, has frequent meltdowns, and cannot stand without support. He is missing a piece of DNA (chromosome 9q22.2) but we are unsure if it made him disabled. He has a diagnosis of severely multiply impaired, paucity of white brain matter, partial agenesis of the corpus callosum, microcephaly, deformities of the ankle and foot, and Autism.
Tuesday, January 2, 2018
Andy had a hard time at Christmas, he cried a lot once our house filled with people, and he did the same on the baby's birthday a few days earlier. He was happy to watch tv in his room though, and play with his toys. We have a video monitor that we use to keep an eye on him. He doesn't get into anything, he just plays with his toys and doesn't try to go anywhere. He will only really army crawl a foot or so. It gets hard when he has meltdowns, and his behavior gets out of control. I went into his room and laid with him a few times to get him to calm down.
The holidays always bring illness, so unfortunately, Andy ended up with strep throat from one of our visitors. None of us has it. Luckily, I had a sore throat as well, so when Andy started getting really upset and not eating, my throat pain lead me to check his throat with a light and a tongue depressor. It looked a little red to me, so I called his doctor on a Saturday morning. They were in and we got an appointment. He had a positive rapid strep test, but his pediatrician wouldn't check me. So, I had to drag Andy to urgent care with me, where I was told I did not have strep.
The baby has been self-feeding for months, so I'm trying to get Andy to do the same. He will put toys and cloths in his mouth with no problem, but will not put food in there. I think he feels its our job. I know he sometimes doesn't have the coordination to pick up and drop in, but its been a long time of us feeding him every meal. So, we will continue to work on feeding finger foods and snacks.
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