I just became a registered nurse, and my ten-year-old son is infant-like, has frequent meltdowns, and cannot stand without support. He is missing a piece of DNA (chromosome 9q22.2) but we are unsure if it made him disabled. He has a diagnosis of severely multiply impaired, paucity of white brain matter, partial agenesis of the corpus callosum, microcephaly, deformities of the ankle and foot, and Autism.
Monday, November 20, 2017
Andy and the baby
Sometimes, Andy is okay with the baby playing with his toys. We have to watch that he doesn't reach out and grab her and squeeze her. He likes to do this to people or objects. He reaches out and starts squeezing really hard. If the baby starts squealing, Andy will not tolerate this. He will have an immediate meltdown. He just had one in the kitchen. I was trying to feed him dinner, and she walked up in her walker. She only made a few small noises, but he lost it. My husband was able to calm him, but I think it took ten full minutes. He had immediate tears falling from his eyes, and he was trying to wipe them away, while fully screaming. We took the baby to a different room to play.
Andy always wants the toy that the baby is playing with. It's nice to see them playing together. The baby cries sometimes now when Andy makes his high-pitched squealing noises. When she gets upset, we take her to a different room. She is trying to figure him out. They both smile at each other, but they can both also upset each other pretty quickly too.
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