Andy had a few days last week at school where he wouldn't stop crying for over an hour. They called to have me come pick him up early. His second molars are coming in because he is over six years old. I give him Tylenol and put Orajel on his gums to numb them. This helps him to stop crying and feel better. The dentist confirmed that the teeth are breaking through the gums, and other teeth are about to erupt as seen on the X-rays. This will be a little rough patch for now. Sometimes he doesn't want to eat, so we wait until the Tylenol helps him to feel better.
I just became a registered nurse, and my ten-year-old son is infant-like, has frequent meltdowns, and cannot stand without support. He is missing a piece of DNA (chromosome 9q22.2) but we are unsure if it made him disabled. He has a diagnosis of severely multiply impaired, paucity of white brain matter, partial agenesis of the corpus callosum, microcephaly, deformities of the ankle and foot, and Autism.
Tuesday, December 22, 2015
Saturday, December 5, 2015
Working on holding markers and crayons
Andy's sister is suddenly loving being his teacher at home. She didn't want a whole lot to do with him before, but now she is finding it fun to show him how to hold markers and crayons. She is also trying to get him to point to colors in books. She told me she is going to make him a report card too. I'm glad she's finding this all fun, and he gets to interact with her more now.
Friday, December 4, 2015
Kylie Jenner posing in a wheelchair is sickening to me
Kylie Jenner, you don't get to choose to put yourself in a wheelchair. God didn't make that your fate. These pictures are a tasteless disgrace. My son is in a wheelchair because his fate was to have missing genes from his DNA, making him severely impaired. Your fate was to be born into a rich and priveleged family, as an able-bodied person, unsure and clueless as to what to do with their privelege. Why can't you use your privelege and platform to make this world a better place? How about you spend a week in a wheelchair and see how difficult it is to get around town, go to appointments, and eat lunch with friends in restaurants.
How about don't be offensive, and instead find a cause to help out with? I educate others on the hurdles of raising special needs kids, and provide information so others in my same shoes won't feel so alone. My husband is helping to design electric cars for other parts of the world where pollution is a huge problem. Please do something with your life that will help and uplift others, not just shock-value tactics to get more "unwanted attention".
If you don't like the fame and can't handle it, then get off of tv. Stop filming reality shows. Get out of the spotlight. People will forget about you. I'm so sick of the famous crybabies of the world, "Oh poor me, I'm crippled by my fame and privelege". Get over yourself.
Why don't you reinvent yourself to actually do some real good in this world and not just sit around taking pictures of yourself all day? Instead of being so offensive, how about being positive and impactful?
These pictures make me so sick and angry, because no disabled person that is in a wheelchair chose that for themselves. You willingly choose to be on tv, do endless photoshoots so you'll be seen even more, and then you are going to complain about it. You are choosing your own crippling condition and you have the power to change it. No one chooses to be limited in what they can do and where they can go because of their wheelchair. Please stop comparing your fame to a person that has no choice but to be in a wheelchair, because it is highly offensive and outrageous.
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