I am very thankful for the three months that we had her services. We really enjoyed all the time we got to spend with our daughter. I really enjoyed all the times I got to go to dinner with her, just the two of us, or sometimes my husband would join us too. I loved the sewing classes I got to attend with her, and the rollerskating nights, and the movie nights. It was good while it lasted. But just as I had feared, all good things must come to an end. Until we get a new worker...sigh.
I just became a registered nurse, and my ten-year-old son is infant-like, has frequent meltdowns, and cannot stand without support. He is missing a piece of DNA (chromosome 9q22.2) but we are unsure if it made him disabled. He has a diagnosis of severely multiply impaired, paucity of white brain matter, partial agenesis of the corpus callosum, microcephaly, deformities of the ankle and foot, and Autism.
Wednesday, November 18, 2015
Our respite care worker quit
On Tuesday, I was patiently waiting for the respite care worker to arrive. She comes three times a week to watch Andy for four hours. Once she was 30 minutes late, I texted her asking, "Are you coming today?" Then she replied, "Sorry, they didn't tell you? I quit on Friday." Nooooooo! She says it wasn't about our family, she loved caring for Andy, it was about too many demands from the agency and not enough money.
Subscribe to:
Post Comments (Atom)
No comments:
Post a Comment
Note: Only a member of this blog may post a comment.