Andy's been in a great mood lately. He's been squealing and laughing a lot. He's doing much better at school now that he is only going for half days. He has also been far less constipated. I have been regularly giving him stool softener, and it is helping him a lot.
Andy is taking lots of steps around the house, while I hold his shoulders. I think it makes him happy to be upright, and doing things other kids do. He's overall pretty happy most of the time, which is a big change from two years ago.
Hopefully, two years ago was a crying jag that will not be seen again. It was years of frustration for both me and Andy, because neither of us understood each other. He was having major constipation issues, and feeling badly all the time. I was upset and in tears all the time, because I didn't know what to do for him to bring relief.
Andy showed me a little bit of love today by leaning in towards my head and kind of hugging me. Those moments never occurred years ago. Now I've gone from feeling so lost and afraid to feeling so lucky I have him.
I just became a registered nurse, and my ten-year-old son is infant-like, has frequent meltdowns, and cannot stand without support. He is missing a piece of DNA (chromosome 9q22.2) but we are unsure if it made him disabled. He has a diagnosis of severely multiply impaired, paucity of white brain matter, partial agenesis of the corpus callosum, microcephaly, deformities of the ankle and foot, and Autism.
Monday, January 26, 2015
Sunday, January 11, 2015
Kimba Ottobock Stroller Leckey model
I really regret getting the Ottobock stroller for my son. The main reason I dislike it so much, is because it is so heavy. The second reason is that it is always falling apart. Screws and other pieces are constantly falling out of it. You have to check it over and tighten everything by hand once a week basically to avoid losing pieces on the thing.
If you go several weeks without tightening screws and knobs, the stroller becomes very wobbly and starts falling apart. This is a four-thousand dollar piece of medical equipment. It's been a big headache if you ask me. Just wanted to put this out there, so that if you are thinking about getting one, maybe you'll think again.
If you go several weeks without tightening screws and knobs, the stroller becomes very wobbly and starts falling apart. This is a four-thousand dollar piece of medical equipment. It's been a big headache if you ask me. Just wanted to put this out there, so that if you are thinking about getting one, maybe you'll think again.
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