I just can't leave Andy at school. He is so helpless, and defenseless. He gets upset so easily. All the other kids can step on him, and rip toys out of his hands. He can't do anything about it. I just want to cry all the time. Right now, I am trying to just take him in for services, and stay a little extra for some class interaction with the other students. However, school just doesn't feel right for him. In fact, it feels all wrong.
I feel that I need to gear up, and find better ways to be his teacher at home. It is just hard to find the energy and motivation. I feel exhausted all the time lately. I've visited several programs, and none seem to be the right fit for him. There's no way I'll leave him anywhere. He's like a 6 month old baby, and he's in a room of three-year olds. I'm crying again.
I just became a registered nurse, and my ten-year-old son is infant-like, has frequent meltdowns, and cannot stand without support. He is missing a piece of DNA (chromosome 9q22.2) but we are unsure if it made him disabled. He has a diagnosis of severely multiply impaired, paucity of white brain matter, partial agenesis of the corpus callosum, microcephaly, deformities of the ankle and foot, and Autism.
That is my concern for my son with complete ACC, developmentally he is like an overgrown 6 mo old and, starting in March, he will be in a classroom with kids who have autism and ADD who can get around by walking and running. All my son can do at this point is army crawl.
ReplyDeleteYou took the words right out of my mouth. I have no idea how the hell I'm going to leave this helpless little child all alone! I'm the only one who understands him the only one who knows what he wants and what he needs. It's scary very scary...
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