Tuesday, December 7, 2010

Introduction


My son Andy is 18 months old and has developmental delays for unknown reasons. MRI and genetic testing have revealed nothing. They've ruled out things, but given us no answers. The EEG is scheduled for next week. He can sit and play with toys now, but will still fall over sometimes. He scoots around on his back slightly. No crawling or walking yet. No pulling up or talking. He is filled with frustration and irritability. I am filled with worry, anxiety and depression. I take it day by day. He is in an Early Intervention program, and I also take him to private insurance paid therapy visits. No one can understand what I feel or am going through unless they too have a child with some type of special needs. I am fragile and trying to keep it together and its hard. Our daughter is typical/normal. She doesn't have any special needs issues. Andy loves interacting with her, and makes excellent eye contact. He loves all of his cousins and any kids that come around him. We are hoping he will someday be able to lead a normal life, and it is the biggest worry and source of anxiety that we have.

1 comment:

  1. We were told at first that the MRI findings couldn't explain our sons delays. Then the pediatrician told us the results were bad, and get to the neurologist right away. The first neurologist said he had and "underdeveloped brain". The second neurologist said that his partially missing corpus callosum, which connects the right and left hemispheres of the brain, could be to blame for delays. Also, possibly lightly mylenated fibers.

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