With three kids it was tough, but I studied for the NCLEX for a couple of months and passed it first try! Now I'm a registered nurse, and doing some job searching. It is taking a long time to hear back from employers (several months on some).
The kids are stressful as a whole, so we are still trying to use the respite home as often as we can. Just last weekend, Andy went to the respite home, while the other two kids stayed with their grandparents. We got away to Mackinaw Island and had a nice night away. We rode a tandem bike around the island, and I begged Kevin to stop and sit on the beach for a few minutes (he was on a mission to get around the island as fast as we could). It was nice to just sit on the beach without having to chase a two year old up and down the shoreline, or worry about Andy getting too hot.
I just became a registered nurse, and my ten-year-old son is infant-like, has frequent meltdowns, and cannot stand without support. He is missing a piece of DNA (chromosome 9q22.2) but we are unsure if it made him disabled. He has a diagnosis of severely multiply impaired, paucity of white brain matter, partial agenesis of the corpus callosum, microcephaly, deformities of the ankle and foot, and Autism.
Wednesday, August 28, 2019
Tuesday, August 13, 2019
New shows for Andy to watch
Andy likes watching Yo Gabba Gabba and Dora the Explorer. He really likes the singing and bright colors. A new show Andy has been watching on Netflix is Little Baby Bum. The episodes are just a bunch of nursery rhymes and he is really enjoying it. I think he gets tired of watching Dora and Gabba sometimes and needs a little change.
Sunday, August 11, 2019
Andy has been melting down easily
Andy has been getting very upset by noises made from his younger sister. She is two and a half and not speaking yet, so she has a lot of outbursts. She yells and gets loud, and it immediately sets off Andy. We have been having his headphones on a lot more lately, they help a lot. Although, when we are in the car and they are sitting right next to each other, he will cry until we reach our destination. They will both be crying almost the whole ride, despite the headphones. I've been trying to minimize the times I have to have them both in the car together, because it gets really awful.
Using the respite home has also been really helpful. Getting a break from the caregiving of Andy has really helped our spirits and energizes me. Having my mother-in-law help with Andy is also very awesome. Having breaks has been really key in keeping us going.
Using the respite home has also been really helpful. Getting a break from the caregiving of Andy has really helped our spirits and energizes me. Having my mother-in-law help with Andy is also very awesome. Having breaks has been really key in keeping us going.
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