It is so hard taking Andy to get a hair cut. I usually take him to the mall, and he ends up crying and screaming throughout the hair cut. I watch what the hairdressers do each time, and I've watched a couple YouTube videos to help me learn to cut Andy's hair. The first few times weren't the greatest, but this most recent cut came out pretty good. It's a relief not to have to drive all the way to the mall, and deal with all the staring and gut-wrenching crying that he does during the hair cut. It's a huge relief actually!
I just became a registered nurse, and my ten-year-old son is infant-like, has frequent meltdowns, and cannot stand without support. He is missing a piece of DNA (chromosome 9q22.2) but we are unsure if it made him disabled. He has a diagnosis of severely multiply impaired, paucity of white brain matter, partial agenesis of the corpus callosum, microcephaly, deformities of the ankle and foot, and Autism.
Tuesday, June 11, 2019
Thursday, June 6, 2019
It's been hard, I'm not gonna lie
It's been a rough last 6 months. I've been studying like crazy to finish up my nursing program, and now I'm studying for my state boards (NCLEX) exam. We are still taking Andy to ABA twice a week, and to other appointments. Now my daughter is in early on/early intervention for kids under three. There are home visits and school visits with that.
I am thinking to start out working to just start part-time for now. The kids have so many appointments and commitments all over the place, it will take a bit to get it all balanced out.
Andy had his 10th birthday, and we took him swimming. He had a great time. We had to keep the little one separated from him when entering and exiting the pool. She was having meltdowns that would have sent Andy into a tailspin. It's always hard work going out with the whole family.
I am thinking to start out working to just start part-time for now. The kids have so many appointments and commitments all over the place, it will take a bit to get it all balanced out.
Andy had his 10th birthday, and we took him swimming. He had a great time. We had to keep the little one separated from him when entering and exiting the pool. She was having meltdowns that would have sent Andy into a tailspin. It's always hard work going out with the whole family.
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