I just became a registered nurse, and my ten-year-old son is infant-like, has frequent meltdowns, and cannot stand without support. He is missing a piece of DNA (chromosome 9q22.2) but we are unsure if it made him disabled. He has a diagnosis of severely multiply impaired, paucity of white brain matter, partial agenesis of the corpus callosum, microcephaly, deformities of the ankle and foot, and Autism.
Wednesday, July 22, 2015
Andy's surgery went well
Andy did great with his surgery. The hospital did not put his IV in until he has already sleeping with a gas mask. He was also given an oral medication before that to get sleepy. He didn't feel any pain before the procedure, which was great! They were able to put pads on the sides of the hospital bed so that Andy wouldn't wiggle through the bars. Once he was starting to wake up, we were able to go back with him, which helped end our worrying. He has about a 3 cm long incision now, and we will confirm in a few days that it is benign.
Monday, July 20, 2015
Surgery day tomorrow
Andy is going under anesthesia tomorrow to remove a suspicious mole. It is most likely a benign cyst, but it must be removed to be certain. The mole may also be irritating him, so it seems best to have it removed. I am feeling a bit anxious tonight about it, but I think it will all go really well.
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