Andy has been crying a bit less, which has been so great. He has been on Abilify and reflux meds for three weeks now. He has a runny nose right now, which I think is contributing to his minor fussiness. I feel like I've been in a dream, not having to hear non-stop crying every minute he is awake. I am scared that any minute it will come back, almost like a post-traumatic stress feeling.
Summer is approaching, and I am worried about how to keep Andy happy when he is not in school. He likes to swim, but the before and after with swimming usually don't go well. Especially when facilities don't have changing tables, or handicapped accessibility.
We now have a handicapped license plate. I don't tend to use it though, if I can get a spot that is pretty close to the entrance. It kills me when I see an elderly person that seems very capable of walking, pull into a "van accessible" spot, when ten other handicapped spots are open. I know so many people with vans for their children that need those spots. This makes me want to get a rear accessible van, instead of a side entry ramp. I don't want to be pissed at these people all the time.
I am so thankful that the weather has been nice. Andy loves getting outside. He likes being pushed around the block or on a swing. He also likes watching other kids play outside. It makes him squeal and clap. He's so cute when he's a happy camper.
I just became a registered nurse, and my ten-year-old son is infant-like, has frequent meltdowns, and cannot stand without support. He is missing a piece of DNA (chromosome 9q22.2) but we are unsure if it made him disabled. He has a diagnosis of severely multiply impaired, paucity of white brain matter, partial agenesis of the corpus callosum, microcephaly, deformities of the ankle and foot, and Autism.
No comments:
Post a Comment
Note: Only a member of this blog may post a comment.