I just became a registered nurse, and my ten-year-old son is infant-like, has frequent meltdowns, and cannot stand without support. He is missing a piece of DNA (chromosome 9q22.2) but we are unsure if it made him disabled. He has a diagnosis of severely multiply impaired, paucity of white brain matter, partial agenesis of the corpus callosum, microcephaly, deformities of the ankle and foot, and Autism.
Sunday, June 19, 2011
How much therapy does he really need?
We just had a two week break from therapy visits due to a change in insurance, and I have to admit, it was so nice. We are currently going once a week for physical therapy and speech therapy, and I wonder if PT could be cut down to twice a month. I work with him every day, and soak up everything they tell me, then put it to use. His therapy is currently a 30 minute drive, and by the time we get there Andy is melting down. DVDs arent working, music, toys, he's pissed when we get there. The facility that is ten minutes from us has a long waiting list right now, so that's why we are venturing out further. I am just not sure, but my gut feeling is that Andy would still benefit from going in twice a month. All the visits are just taking their toll on me.
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