I just became a registered nurse, and my ten-year-old son is infant-like, has frequent meltdowns, and cannot stand without support. He is missing a piece of DNA (chromosome 9q22.2) but we are unsure if it made him disabled. He has a diagnosis of severely multiply impaired, paucity of white brain matter, partial agenesis of the corpus callosum, microcephaly, deformities of the ankle and foot, and Autism.
Monday, July 4, 2011
We have the gait trainer
Andy's gait trainer has arrived a month later than promised, but it is here. He isn't doing very well in it, so it has been depressing. I try to put him in it two to three times a day, usually ten to twenty minutes at a time. At least he will let me put him in it without fighting and fussing. He will stand straight up 5 percent of the time, and maybe bounce a little. I guess I am not expecting to see steps for a few months.
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