I just became a registered nurse, and my ten-year-old son is infant-like, has frequent meltdowns, and cannot stand without support. He is missing a piece of DNA (chromosome 9q22.2) but we are unsure if it made him disabled. He has a diagnosis of severely multiply impaired, paucity of white brain matter, partial agenesis of the corpus callosum, microcephaly, deformities of the ankle and foot, and Autism.
Wednesday, June 1, 2011
At peace
I went to a moms support group tonight at my sons physiatrists office. It was my first time going. After having gone, I am feeling very at peace now. Just talking with the other women in person that understand how exhausting it is felt very freeing. I came home feeling like I fully accept whatever may lie ahead, and am happy with the way my family is. We all love each other so much, and are grateful to have each other.
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