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We are going in on Monday for a 24-hour EEG to rule out any seizure activity.
I just became a registered nurse, and my ten-year-old son is infant-like, has frequent meltdowns, and cannot stand without support. He is missing a piece of DNA (chromosome 9q22.2) but we are unsure if it made him disabled. He has a diagnosis of severely multiply impaired, paucity of white brain matter, partial agenesis of the corpus callosum, microcephaly, deformities of the ankle and foot, and Autism.
Hi Amy, I came across your blog on BBC. I'm thrilled to see your sons progress with language. My 15 month old son has global delays. I found your blog on Baby Center, I hope you don't mind if I follow. It's such an emotional roller coaster having a child with delays. Especially when you have no answers as to why.
ReplyDeleteUnfortunately, Andy does not speak any more. The words he said only lasted a few days. I've been waiting several years to hear him say anything again. He is almost four now.
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