I just became a registered nurse, and my ten-year-old son is infant-like, has frequent meltdowns, and cannot stand without support. He is missing a piece of DNA (chromosome 9q22.2) but we are unsure if it made him disabled. He has a diagnosis of severely multiply impaired, paucity of white brain matter, partial agenesis of the corpus callosum, microcephaly, deformities of the ankle and foot, and Autism.
Sunday, February 27, 2011
My family thinks Andy will be just fine and don't seem to be worried
He's okay, it will just take time. That's what they all think. Maybe I am just over worrying. I just continue to pray for Andy and for strength and patience. Worrying doesn't help anything, I know. We are doing everything we can to help him. We are seeing an orthotist in a couple of weeks. PT still hasn't tried to put him in any equipment yet. I would like her to try soon, and am trying to let her do things at her own pace, but what's the hold up??? She doesn't want him to become dependent on equipment she says, but he clearly needs it. He will be two in may and walking seems nowhere on the horizon.
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