I just became a registered nurse, and my ten-year-old son is infant-like, has frequent meltdowns, and cannot stand without support. He is missing a piece of DNA (chromosome 9q22.2) but we are unsure if it made him disabled. He has a diagnosis of severely multiply impaired, paucity of white brain matter, partial agenesis of the corpus callosum, microcephaly, deformities of the ankle and foot, and Autism.
Monday, February 28, 2011
Finding special time for my daughter
I schedule twice a week swimming and ballet for my daughter. My husband comes home from work and stays with Andy, so that I can take her to her classes. It has been hard to keep my daughter from being jealous from all the time that Andy requires. So, this gives us special time together. I am also having a hard time keeping her busy during Andy's therapy visits. It is best if she is in school, or doesn't have to go with us, but lately she does. She can only color for so long, before getting bored. We may have to invest in a DS or something. Ipod works for a little while, but she is only three. Next year, I will try to better get her school days coordinated with his office visits.
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