I just became a registered nurse, and my ten-year-old son is infant-like, has frequent meltdowns, and cannot stand without support. He is missing a piece of DNA (chromosome 9q22.2) but we are unsure if it made him disabled. He has a diagnosis of severely multiply impaired, paucity of white brain matter, partial agenesis of the corpus callosum, microcephaly, deformities of the ankle and foot, and Autism.
Wednesday, May 25, 2011
Sad day/ End of Year evaluations
I am so, so sad today. It all hit me after my son's IEP was done at our house, and I read over his goals. Finger feeding, getting into/out of positions, crawling, standing and maybe cruising. I am so overwhelmed with sadness and I feel so helpless and lost again!!! I thought I had it together, but as I have seen from posts of other special needs moms, there are many ups and downs. Perhaps more downs than ups. You feel good for a while, then something triggers sadness. I know this will pass. I just have to continue on my quest to have a great summer, regardless of disabilities.
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