I just became a registered nurse, and my ten-year-old son is infant-like, has frequent meltdowns, and cannot stand without support. He is missing a piece of DNA (chromosome 9q22.2) but we are unsure if it made him disabled. He has a diagnosis of severely multiply impaired, paucity of white brain matter, partial agenesis of the corpus callosum, microcephaly, deformities of the ankle and foot, and Autism.
Friday, May 6, 2011
Bedtime trouble
We have a bedtime routine we have been using forever, and nothing has changed. Lately, Andy screams for an hour or two when it is time for bed. It has been tough on everyone. He is so angry it is hard to calm him down. I finally got him to go down tonight with a really calm voice telling him it's okay, but it only works after he's been crying for a while. He will be two in a month. Why does this have to be so hard?
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