I just became a registered nurse, and my ten-year-old son is infant-like, has frequent meltdowns, and cannot stand without support. He is missing a piece of DNA (chromosome 9q22.2) but we are unsure if it made him disabled. He has a diagnosis of severely multiply impaired, paucity of white brain matter, partial agenesis of the corpus callosum, microcephaly, deformities of the ankle and foot, and Autism.
Friday, March 18, 2011
State help is on the way
After following up with the state, I found out that even though I was told Andy wasn't approved to be in the program, he qualifies to have follow-up visits and tests with specialists covered by them. His future equipment may also be covered if I take the correct steps to get it. He isn't considered eligible with GDD and hypotonia, but the brain abnormalities may get him into the program. We are still waiting to find out. If he gets in, the state will pick up all therapy copays, which would help out a lot. All my phone calls with Andy screaming in the background seemed to pay off.
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