I just became a registered nurse, and my ten-year-old son is infant-like, has frequent meltdowns, and cannot stand without support. He is missing a piece of DNA (chromosome 9q22.2) but we are unsure if it made him disabled. He has a diagnosis of severely multiply impaired, paucity of white brain matter, partial agenesis of the corpus callosum, microcephaly, deformities of the ankle and foot, and Autism.
Tuesday, December 31, 2013
We had a good Christmas
We had a pretty good Christmas. Andy didn't have too many outbursts. He enjoyed new musical toys like pianos and trucks. I was worried I would have a really hard time with him out of school for two weeks. He has been manageable. When he has outbursts, he usually just needs time alone in his room, and often falls asleep.
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