I called our county mental health department to ask for help with my son's constant crying last week. The caseworker came today and met me and Andy. I cried a bit when asked how I'm dealing with all this. Andy cried a bit too, in spurts. He watched Dora the Explorer, and Yo Gabba Gabba to keep calm. It worked a little.
The visit took two hours. I had to hand over copies of financial documents, and medical documents and tell of my struggles with Andy. I think the caseworker could see that I was struggling to hold it all together. I was genuinely having a hard time, and it came across.
They are supposed to provide a respite coordinator within 14 days. Then we should be able to start receiving weekly help with Andy. We will have to pay for the help, but that's okay for now, I just need the help.
I just became a registered nurse, and my ten-year-old son is infant-like, has frequent meltdowns, and cannot stand without support. He is missing a piece of DNA (chromosome 9q22.2) but we are unsure if it made him disabled. He has a diagnosis of severely multiply impaired, paucity of white brain matter, partial agenesis of the corpus callosum, microcephaly, deformities of the ankle and foot, and Autism.
Hi Amy
ReplyDeleteI am so glad to hear you are going to be getting some help. It takes a lot of people to raise a child with special needs. I am so sorry you are having to go through this. Sending prayers your way.