I just became a registered nurse, and my ten-year-old son is infant-like, has frequent meltdowns, and cannot stand without support. He is missing a piece of DNA (chromosome 9q22.2) but we are unsure if it made him disabled. He has a diagnosis of severely multiply impaired, paucity of white brain matter, partial agenesis of the corpus callosum, microcephaly, deformities of the ankle and foot, and Autism.
Tuesday, August 23, 2011
Seeing just a hint of verbal understanding from Andy
Today, I told Andy, "lets go say night-night to daddy", and he held his hand way out and said, "da da" then open and closed his hand. While nearing the end of his bowl of food, Andy said "ahh done food", and didn't open his mouth anymore for food when I tried to feed him. So...I am hoping that these little tidbits will lead to more talking. I think he is finally trying to communicate with me verbally! Thank God! I'm worried sick over him, it is so nice to finally see some results from the speech therapy. He has been going for two months now. First once a week for a month, then twice a week for a month. We are now going to return to once a week for a while. With school starting, he is going to have a ton of weekly appointments, plus private ones. We'll see how much we can handle piling on, in terms of extra speech appointments.
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